Tell Your Friends

Each person can make a difference in the fight against EB. We ask that you email all of your friends and family members and tell them about EB and EB Trek 2001. The following link is a sample message you can cut and paste into an email to everyone you know. Please note the places at the beginning and end of the email where you can personalize the message.  This is a worthy cause. Soon the lives of many children will be better because of your charity. Thank you for being a part of the cure. Sample Email Text: (Place a personal message here at the beginning of this email. It will help if you endorse the members of Team EB Trek) Imagine a small girl wrapped in gauze to protect sores that cover much of her tiny body. Imagine her bravely smiling through her tears because she is just a little girl and doesn't understand what makes her hurt so much, so often. If you can, then you have imagined not only someone who needs your help, but also someone you CAN help. The disease this little girl suffers from, along with over 100,000 other patients in the U.S., is called Epidermolysis Bullosa (EB). EB is a group of inherited skin disorders that cause the skin to blister or tear from the minor trauma of daily living. Patients with the severe forms never know a day without pain, and most of them do not live to see their 30th birthday. A brilliant team of doctors at Stanford University is making amazing progress with EB research. They are currently working with the FDA for approval to treat one of the lethal forms of EB with gene-therapy, but there is still much to be done for the remaining forms of EB. A lack of funding is the most persistent obstacle to the eradication of this tragic disease. In order to raise money and awareness of EB, Andrew Berthrong, Rocky Garff, Dan Hoopes, and Jake Merback will be riding bikes from Provo, UT to Vancouver, B.C. to Tijuana, Mexico-a total of 2,600 miles. To find out more about our ride and the disease we support, visit www.ebtrek.org. Our goal is to raise $50,000 for EB medical research-about $20.00 for every mile we pump! We invite you to catch the vision of EB Trek and generously lend your support. Gary and Lynn Anderson of Piedmont, California, started the Epidermolysis Bullosa Medical Research Foundation (EBMRF) in 1991. They lost two children to EB. All funds raised through EB Trek 2001 will be donated to this Foundation. No money will be used to finance the ride itself. You can help right now, and here’s how: EBTrek is asking each person who receives this email to donate to EB Research through PayPal. If you’re already a PayPal member, the email address accepting donations is donate@ebtrek.org. If you are able to donate 1 cent per mile or $26.00 (or more), your name will be added to the list of donors on: http://www.ebtrek.org/sponsors/individual.html. Please click on this link to donate through PayPal: https://www.paypal.com/xclick/business=donate%40ebtrek.org&item_name=EBMRF We are also accepting donations through the mail. If you would prefer to donate to EB with a check, please make your check out to "EBMRF" and send it to the address below. The mailing address is: EBMRF 130 Sandringham Road Piedmont, CA 94611 Please note that 100% of the money you donate goes directly to EB Research and not for funding the ride. Your donation is very important. A gene therapy treatment is very near and could become a reality within one year. There is another way you can help, which, by the way, costs you nothing. Just send this email to all of your friends and family. To do so, instead of forwarding it, please open a new email and copy and paste the content of this email into the new email. Put your own personal greeting and endorsement at the top, sign the bottom, and send it. Many EB kids will benefit greatly from your generosity. Thank you, (your name)